Digital Participatory Research with Children and Adolescents: A Systematic Review of Methodological Trends and the Emergence of Health-Focused Practices

Authors

DOI:

https://doi.org/10.56294/mw2025684

Keywords:

Participatory Research, Youth Empowerment, Digital Tools, Health Research, Co-Research, Systematic Review, Child Participation, Digital Inclusion

Abstract

This systematic review analyzes 23 empirical studies conducted between 2000 and 2025 that engaged children and adolescents as co-researchers in participatory research projects using digital tools. Applying PRISMA 2020 guidelines, the studies were selected from Scopus, Web of Science, and EBSCOhost databases. Using CASP criteria and RStudio for thematic synthesis, the review reveals how digital methodologies such as photovoice, participatory GIS, and digital storytelling facilitated co-researcher roles and enhanced empowerment, critical thinking, and civic identity among youth. A significant proportion of the studies focused on health-related topics, including physical activity, mental health, and nutrition, highlighting the transformative outcomes of youth-led inquiry in these domains. Despite the overall methodological robustness and positive outcomes, limitations were noted in reflexivity, reporting transparency, and inclusion of studies from Latin America. The review underscores the potential of participatory digital research to democratize knowledge production in health and calls for greater geographical and methodological inclusiveness.

 

References

1. de Toro X, Barros BS, Schwartzman MS, Cordero AR, Lara L. Plataforma Online de Evaluación de Compromiso Escolar, Versión 3.0: avance hacia un sistema de protección de las trayectorias educativas. European Journal of Education and Psychology. 2021;14(2):1-29. doi: https://doi.org/10.32457/ejep.v14i2.1739.

2. Familia MdDSy. “Por medio de la cual se establece un estatuto de garantía y protección integral de derechos de la niñez y adolescencia”. In: Familia MdDSy, editor. Ley 21430. Chile: Diario Oficial de 15 de marzo de 2022: Ministerio de Desarrollo Social y Familia; 2022.

3. Saracostti M, Caro P, Grau MO, Kinkead AP, Vatter N. El derecho de participación en la niñez: alcances y desafíos para la investigación social. Revista del CLAD Reforma y Democracia. 2015(62):211-44. https://repositorio.uc.cl/handle/11534/22719?show=full

4. Cuevas-Parra P. Co-researching with children in the time of COVID-19: Shifting the narrative on methodologies to generate knowledge. International Journal of Qualitative Methods. 2020;19:1609406920982135. doi: https://doi.org/10.1177/1609406920982135. v

5. Marinkovic Chavez K, Gibbs L, Saracostti M, Lafaurie A, Campbell R, Sweeney D, et al. Think Big: A multinational collaboration to promote children's role as coresearchers in participatory research. American Journal of Community Psychology. 2022;69(3-4):306-17. doi: https://doi.org/10.1002/ajcp.12582.

6. Santana AI, Leisewitz AV, Bravo P, Nogueira A. Consideraciones éticas para investigaciones con niños, niñas y adolescentes como coinvestigadores, reflexión desde la experiencia chilena. Revista Colombiana de Bioética. 2023;18(2). doi: https://doi.org/10.18270/rcb.v18i2.4372.

7. Bakhtiar A, Lang M, Shelley B, West M. Research with and by children: a systematic literature review. Review of Education. 2023;11(1):e3384. doi: https://doi.org/10.1002/rev3.3384.

8. Tintiangco-Cubales A, Daus-Magbual A, Desai M, Sabac A, Von Torres M. Into our hoods: where critical performance pedagogy births resistance. International Journal of Qualitative Studies in Education. 2016;29(10):1308-25. doi: https://doi.org/10.1080/09518398.2016.1201165.

9. Chinapaw M, Klaufus L, Oyeyemi A, Draper C, Palmeira A, Silva M, et al. Youth-centred participatory action approach towards co-created implementation of socially and physically activating environmental interventions in Africa and Europe: the YoPA project study protocol. BMJ OPEN. 2024;14(2). doi: https://doi.org/10.1136/bmjopen-2024-084657.

10. Chen PY, Weiss FL, Nicholson HJ. Girls study girls Inc.: Engaging girls in evaluation through participatory action research. American Journal of Community Psychology. 2010;46(1):228-37. doi: https://doi.org/10.1007/s10464-010-9328-7.

11. Teixeira S. Beyond Broken Windows: Youth Perspectives on Housing Abandonment and its Impact on Individual and Community Well-Being. Child Indicators Research. 2016;9(3):581-607. doi: https://doi.org/10.1007/s12187-015-9327-1.

12. Lundy L, McEvoy L. Children’s rights and research processes: Assisting children to (in) formed views. Childhood. 2012;19(1):129-44. doi: https://doi.org/10.1177/0907568211409078.

13. Ozer EJ, Douglas L. The impact of participatory research on urban teens: An experimental evaluation. American journal of community psychology. 2013;51(1-2):66-75. doi: https://doi.org/10.1007/s10464-012-9546-2.

14. Shier H. Children as researchers in Nicaragua: Children’s consultancy to transformative research. Global Studies of Childhood. 2015;5(2):206-19. doi: https://doi.org/10.1177/2043610615587798.

15. Arias ALS, Ferrandis IG, Hernández LCC. Metodología de análisis de la percepción ambiental de los niños en una comunidad periurbana. Sophia. 2020;16(1):19-32. doi: https://doi.org/10.18634/sophiaj.16v.1i.1004.

16. Freire K, Pope R, Jeffrey K, Andrews K, Nott M, Bowman T. Engaging with Children and Adolescents: A Systematic Review of Participatory Methods and Approaches in Research Informing the Development of Health Resources and Interventions. Adolescent Research Review. 2022;7(3):335-54. doi: https://doi.org/10.1007/s40894-022-00181-w.

17. Orlowski SK, Lawn S, Venning A, Winsall M, Jones GM, Wyld K, et al. Participatory Research as One Piece of the Puzzle: A Systematic Review of Consumer Involvement in Design of Technology-Based Youth Mental Health and Well-Being Interventions. JMIR Human Factors. 2015;2(2):e12. doi: https://doi.org/10.2196/humanfactors.4361.

18. Mallan KM, Parlo S, and Giardina N. The challenges of participatory research with ‘tech-savvy’ youth. Journal of Youth Studies. 2010;13(2):255-72. doi: https://doi.org/10.1080/13676260903295059.

19. Tsang VWL, Sarah F, Charles T, and Smith S. A novel way to engage youth in research: evaluation of a participatory health research project by the international children’s advisory network youth council. International Journal of Adolescence and Youth. 2020;25(1):676-86. doi: https://doi.org/10.1080/02673843.2020.1716817.

20. Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ. 2021;372:n71. doi: https://doi.org/10.1136/bmj.n71.

21. Abraczinskas M, Zarrett N. Youth Participatory Action Research for Health Equity: Increasing Youth Empowerment and Decreasing Physical Activity Access Inequities in Under-resourced Programs and Schools. American Journal of Community Psychology. 2020;66(3):232-43. doi: https://doi.org/10.1002/ajcp.12433.

22. Boni A, López-Fogués A, Millán G, Belda-Miquel S. Analysing participatory video through the capability approach – A case study in Quart de Poblet (Valencia, Spain). Action Research. 2020;18(3):282-301. doi: https://doi.org/10.1177/1476750317715073.

23. Darling-Aduana J, Hemingway K. Centering Student Voice to Reimagine Curriculum and Instruction in an Online Citizenship Course. TechTrends. 2024;68(6):1066-77. doi: https://doi.org/10.1007/s11528-024-01001-9.

24. Forrester JV, Covington Clarkson LM. CULTIVATING MATHEMATICAL PROFICIENCIES AND IDENTITIES THROUGH CULTURALLY AND COMMUNITY INSPIRED ACTIVITIES. Prometeica. 2023(27):761-71. doi: https://doi.org/10.34024/prometeica.2023.27.15375.

25. Garcia AP, Minkler M, Cardenas Z, Grills C, Porter C. Engaging Homeless Youth in Community-Based Participatory Research: A Case Study From Skid Row, Los Angeles. Health Promotion Practice. 2014;15(1):18-27. doi: https://doi.org/10.1177/1524839912472904.

26. Halliday AJ, Kern ML, Garrett DK, Turnbull DA. The student voice in well-being: a case study of participatory action research in positive education. Educational Action Research. 2019;27(2):173-96. doi: https://doi.org/10.1080/09650792.2018.1436079.

27. Halsall T, Daley M, Hawke L, Henderson J, Matheson K. “You can kind of just feel the power behind what someone's saying”: a participatory-realist evaluation of peer support for young people coping with complex mental health and substance use challenges. BMC Health Services Research. 2022;22(1). doi: https://doi.org/10.1186/s12913-022-08743-3.

28. Hickey SD, Maidment S-J, Heinemann KM, Roe YL, Kildea SV. Participatory action research opens doors: Mentoring Indigenous researchers to improve midwifery in urban Australia. Women and Birth. 2018;31(4):263-8. doi: https://doi.org/10.1016/j.wombi.2017.10.011.

29. Kaluzeviciute G, Jessiman T, Burn A-M, Ford T, Geijer–Simpson E, Kidger J, et al. Participatory Action Research on School Culture and Student Mental Health: A Study Protocol. International Journal of Qualitative Methods. 2021;20. doi: https://doi.org/10.1177/16094069211047753.

30. Koudelka CM. Tapping Teen Power: (Re)Positioning Students for Civic Action. Journal of Adolescent and Adult Literacy. 2021;64(4):389-98. doi: https://doi.org/10.1002/jaal.1126.

31. Magnusson M, Hallmyr Lewis M, Smaga-Blom M, Lissner L, Pickering C. Health Equilibrium Initiative: A public health intervention to narrow the health gap and promote a healthy weight in Swedish children. BMC Public Health. 2014;14(1). doi: https://doi.org/10.1186/1471-2458-14-763.

32. Mooney-Somers J, Maher L. The Indigenous Resiliency Project: a worked example of community-based participatory research. New South Wales public health bulletin. 2009;20(7):112-8. doi: https://doi.org/10.1071/nb09007.

33. Morrison A, Erstad O, Liestøl G, Pinfold N, Snaddon B, Hemmersam P, et al. Investigating agentive urban learning: an assembly of situated experiences for sustainable futures. Oxford Review of Education. 2019;45(2):204-23. doi: https://doi.org/10.1080/03054985.2018.1556627.

34. Munyaka J-CB, Chenal J, de Roulet PTH, Mandal AK, Pudasaini U, Otieno NO. Multi-Level Participatory GIS Framework to Assess Mobility Needs and Transport Barriers in Rural Areas: A Case Study of Rural Mumias East, a Sub-County of Kakamega, Kenya. Sustainability (Switzerland). 2023;15(12). doi: https://doi.org/10.3390/su15129344.

35. Pais SC, Rodrigues M, Menezes I. Community as locus for health formal and non-formal education: The significance of ecological and collaborative research for promoting health literacy. Frontiers in Public Health. 2014;2. doi: https://doi.org/10.3389/fpubh.2014.00283.

36. Petersen DM, Minkler M, Vásquez VB, Kegler MC, Malcoe LH, Whitecrow S. Using community-based participatory research to shape policy and prevent lead exposure among Native American children. Progress in community health partnerships : research, education, and action. 2007;1(3):249-56. doi: https://doi.org/10.1353/cpr.2007.0028.

37. Thompson C, Crocket F. Race, Repair, and Youth Participatory Action Research in one Rural School. Rural Educator. 2022;43(1):1-12. doi: https://doi.org/10.35608/ruraled.v43i1.1203.

38. Trott CD. Children’s constructive climate change engagement: Empowering awareness, agency, and action. Environmental Education Research. 2020;26(4):532-54. doi: https://doi.org/10.1080/13504622.2019.1675594.

39. Zoellner J, Zanko A, Price B, Bonner J, Hill JL. Exploring community gardens in a health disparate population: Findings from a mixed methods pilot study. Progress in Community Health Partnerships: Research, Education, and Action. 2012;6(2):153-65. doi: https://doi.org/10.1353/cpr.2012.0014.

40. Debenham J, Birrell L, Newton NC, Devine EK, Champion KE, Stapinski LA, et al. Co-design of digital public health substance use resources: A collaboration between young people and experts. Health Promotion Journal of Australia. 2025;36(1):e874. doi: https://doi.org/10.1002/hpja.874.

41. Rácz A, Sik D. Digital Technology-Based Research With Young People in the Context of Hungarian Child Protection. In: Roth M, Alfandari R, Crous G, editors. Participatory Research on Child Maltreatment with Children and Adult Survivors. Emerald Publishing Limited; 2023. p. 129-44.

42. Bevan Jones R, Stallard P, Agha SS, Rice S, Werner-Seidler A, Stasiak K, et al. Practitioner review: Co-design of digital mental health technologies with children and young people. Journal of Child Psychology and Psychiatry. 2020;61(8):928-40. doi: https://doi.org/10.1111/jcpp.13258.

43. Lewis CC, Taba M, Allen TB, Caldwell PH, Skinner SR, Kang M, et al. Developing an Educational Resource Aimed at Improving Adolescent Digital Health Literacy: Using Co-Design as Research Methodology. J Med Internet Res. 2024;26:e49453. doi: https://doi.org/10.2196/49453.

44. Ludlow K, Russell JK, Ryan B, Brown RL, Joynt T, Uhlmann LR, et al. Co-designing a digital mental health platform, “Momentum”, with young people aged 7–17: A qualitative study. DIGITAL HEALTH. 2023;9:20552076231216410. doi: https://doi.org/10.1177/20552076231216410.

45. Porche MV, Folk JB, Tolou-Shams M, Fortuna LR. Researchers’ Perspectives on Digital Mental Health Intervention Co-Design With Marginalized Community Stakeholder Youth and Families. Frontiers in Psychiatry. 2022;Volume 13 - 2022. doi: https://doi.org/10.3389/fpsyt.2022.867460.

46. Collier DR. Re-Imagining Research Partnerships: Thinking through" Co-Research" and Ethical Practice with Children and Youth. Studies in Social Justice. 2019;13(1). doi: https://doi.org/10.26522/ssj.v13i1.1926.

47. Zelenko O, Hides L, Kavanagh D, Stoyanov S, Quek L-H, Tulloch K, et al. Using Participatory Design (PD) as youth engagement strategy to inform design and development of evidence-based wellbeing e-tools. Young and Well CRC Connect 2014. 2014.

48. Havukainen M, H. LT, Sini K, Janne J, and Sutinen E. Co-designing Digital Games Across the Boundary of Childhood and Youth. International Journal of Human–Computer Interaction. 2025;41(5):3369-87. doi: https://doi.org/10.1080/10447318.2024.2338328.

49. Thabrew H, Fleming T, Hetrick S, Merry S. Co-design of eHealth Interventions With Children and Young People. Frontiers in Psychiatry. 2018;Volume 9 - 2018. doi: https://doi.org/10.3389/fpsyt.2018.00481.

50. Anselma M, Altenburg T, Chinapaw M. Kids in Action: The protocol of a Youth Participatory Action Research project to promote physical activity and dietary behaviour. BMJ open. 2019;9(3):e025584. doi: https://doi.org/10.1136/bmjopen-2018-025584.

51. Donovan D. How children represent sustainable consumption through participatory action research and co‐design of visual narratives. International Journal of Consumer Studies. 2016;40(5):562-74. doi: https://doi.org/10.1111/ijcs.12301.

52. Graham A, Simmons C, Truscott J. ‘I’m more confident now, I was really quiet’: exploring the potential benefits of child-led research. International Journal of Qualitative Studies in Education. 2017;30(2):190-205. doi: https://doi.org/10.1080/09518398.2016.1242803.

53. Michail S, Kellett M. Child‐led research in the context of A ustralian social welfare practice. Child & Family Social Work. 2015;20(4):387-95. doi: https://doi.org/10.1111/cfs.12087.

54. Buckley-Marudas MF, Soltis S. What youth care about: Exploring topic identification for youth-led research in school. The Urban Review. 2020;52(2):331-50. doi: https://doi.org/10.1007/s11256-019-00530-5.

55. Carrington S, Bland D, Brady K. Training young people as researchers to investigate engagement and disengagement in the middle years. International Journal of Inclusive Education. 2010;14(5):449-62. doi: https://doi.org/10.1080/13603110802504945.

56. Anyon Y, Bender K, Kennedy H, Dechants J. A systematic review of youth participatory action research (YPAR) in the United States: Methodologies, youth outcomes, and future directions. Health Education & Behavior. 2018;45(6):865-78. doi: https://doi.org/10.1177/1090198118769357.

57. Famaye T, Arastoopour IG, and Adisa I. Shifting roles and slow research: children’s roles in participatory co-design of critical machine learning activities and technologies. Behaviour & Information Technology. 2025;44(5):912-33. doi: https://doi.org/10.1080/0144929X.2024.2313147.

58. Ward V, Parsons S, Kovshoff H, Crump B. Co-creation of Research and Design During a Coding Club With Autistic Students Using Multimodal Participatory Methods and Analysis. Frontiers in Education. 2022;Volume 7 - 2022. doi: https://doi.org/10.3389/feduc.2022.864362.

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2025-10-23

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Systematic reviews or meta-analyses

How to Cite

1.
Suazo-Galdamés IC, Chaple-Gil AM, Saracostt M. Digital Participatory Research with Children and Adolescents: A Systematic Review of Methodological Trends and the Emergence of Health-Focused Practices. Seminars in Medical Writing and Education [Internet]. 2025 Oct. 23 [cited 2025 Nov. 27];4:684. Available from: https://mw.ageditor.ar/index.php/mw/article/view/684